Like I mentioned last week, LC was born with a birth defect called congenital diaphragmatic hernia. Her defect wasn't caught on ultrasound, so it was quite a surprise when she was born. Until about 8am on 8-11-05, we had no clue this birth defect existed. Had you heard about it before you met someone who has dealt with CDH? Didn't think so.
Why is this defect so unknown? It occurs with the same incidence as spina bifida and cystic fibrosis. Betcha heard of those, right? It is also a very serious birth defect. It isn't really clear what the survival rate, but it may be anywhere from 50% to 75% (pure guess there). THere are way too many angels in heaven who got their wings from CDH. Other complications from CDH are too numerous to list. Somehow we got off "easy" and I'm still wondering why.
This is your chance to help spread the word. I have two challenges for you:
1. If you are a lurker (and I hope there are a few of you out there, otherwise my audience is about 5 people) I challenge you to de-lurk sometime this week. For everyone who makes a comment this week on any post, I will donate a book to Connor's Books. You can read about it here. Connor was born with CDH and shares a birthday with EE. Let's see how many books we can donate for this cause.
2. Tell 2 people about CDH. Just mention "Have you ever heard of this?" Just to get people thinking.
If you have a chance, stop by another CDH mom blog. Here is one I highly recommened. From there you can link yourself to many other stories. Or take a look at this site to learn some additional information. Or you can read LC's entire story here.
Monday, March 31, 2008
Sunday, March 30, 2008
Note to Self:
If you put a piece of candy (say, a Reese's chocolate covered peanut butter Easter Bunny) in the pocket of your favorite hooded sweatshirt and forget about it, don't think it will be a surprise treat 6 hrs later. It will instead be an inedible greasy, chocolate mess in your front pocket. I hate it when I make more work for myself! Off to soak my sweatshirt.
Ch-ch-ch-ch-changes
Don't be alarmed if everytime you come back this week things look a little different. I'm not sure how I want things to look, so I'm doing some experimenting. Its kinda like trying on clothes (which EE does about 4 times a day now) and I'm not sure which outfit looks the best.
Right now I'm in a green mood. I ordered some new clothes from Old Navy and I think 50% of them are a shade of green. Not sure why. Must be a spring thing.
And I'm not sure why I picked the golf picture, it was something dh took (bonus points to the first person who can identify the course) and it matched the green. I like golf; dh lives and breathes golf. I didn't learn how to play until grad school, and I've still never played on a regular course for 18 holes. There is no way in hell dh will golf with me, I suck too bad. But I think its fun. Now if only dh were as good as Tiger, we'd be set.
Right now I'm in a green mood. I ordered some new clothes from Old Navy and I think 50% of them are a shade of green. Not sure why. Must be a spring thing.
And I'm not sure why I picked the golf picture, it was something dh took (bonus points to the first person who can identify the course) and it matched the green. I like golf; dh lives and breathes golf. I didn't learn how to play until grad school, and I've still never played on a regular course for 18 holes. There is no way in hell dh will golf with me, I suck too bad. But I think its fun. Now if only dh were as good as Tiger, we'd be set.
Bookworm
I love to read. We were raised to be readers and we saw both our parents reading for leisure at home. One set of grandparents would give us a book every year for Christmas, and when they sent money to our kids I would always use it to buy books. Both of my sisters are readers (kdotp probably reads even more than me) and I have a SIL, G, who trumps us all. I bet she has read the contents of entire libraries--she is voracious.
A friend of mine introduced me to the site http://www.goodreads.com/ You can track books you've read, make a list of books you want to read, write/read reviews and share with friends. I've found it a great place to keep track of those books you hear in passing and think "Ooo, I want to read that someday." So far my "to read" list is about about 20 books long and I'm chipping away at it. I open my list on goodreads, then go to my library's website and put holds on books I want to read.
Right now I am on a chick-lit and mom-lit kick. I need something quick and easy to read at the end of the day when I don't really want to think about much. I do like to read other types of books, it just seems I gravitate towards those more right now. Dh complains every time I come home from the library and have more of these books to read. He tells me I should be reading books about starting my own business or making money from home. Unless there is a book titled The Foolproof Way to Make Millions by Sitting on Your Ass in Pajamas and Reading Other People's Blogs I'm not interested at the moment. I will say he got me a very cool clip-on reading light for my birthday--bright pink with LED lights.
This weekend I read Remember Me? by Sophie Kinsella. She is the author of the Shopaholic series (a must-read for those who love funny chick-lit). It was good, although maybe not as witty as the Shopaholic books. I've started Peony in Love by Lisa See (she also wrote Snow Flower and the Secret Fan, which is a great book) and also have Size 12 is Not Fat by Meg Cabot (BTW, if I had to pick a book title to describe my life, that would be it right now) and The Curious Incident of the Dog at Night Time which is a fiction book written from the perspective of a teenager with autism. I haven't really gotten into any of them yet, we'll see which one I finish first.
Anyone got any good books to add to my "to-read" list? I love book recommendations!
A friend of mine introduced me to the site http://www.goodreads.com/ You can track books you've read, make a list of books you want to read, write/read reviews and share with friends. I've found it a great place to keep track of those books you hear in passing and think "Ooo, I want to read that someday." So far my "to read" list is about about 20 books long and I'm chipping away at it. I open my list on goodreads, then go to my library's website and put holds on books I want to read.
Right now I am on a chick-lit and mom-lit kick. I need something quick and easy to read at the end of the day when I don't really want to think about much. I do like to read other types of books, it just seems I gravitate towards those more right now. Dh complains every time I come home from the library and have more of these books to read. He tells me I should be reading books about starting my own business or making money from home. Unless there is a book titled The Foolproof Way to Make Millions by Sitting on Your Ass in Pajamas and Reading Other People's Blogs I'm not interested at the moment. I will say he got me a very cool clip-on reading light for my birthday--bright pink with LED lights.
This weekend I read Remember Me? by Sophie Kinsella. She is the author of the Shopaholic series (a must-read for those who love funny chick-lit). It was good, although maybe not as witty as the Shopaholic books. I've started Peony in Love by Lisa See (she also wrote Snow Flower and the Secret Fan, which is a great book) and also have Size 12 is Not Fat by Meg Cabot (BTW, if I had to pick a book title to describe my life, that would be it right now) and The Curious Incident of the Dog at Night Time which is a fiction book written from the perspective of a teenager with autism. I haven't really gotten into any of them yet, we'll see which one I finish first.
Anyone got any good books to add to my "to-read" list? I love book recommendations!
Saturday, March 29, 2008
Nevermind!
So dh had his interview yesterday. This company literally contacted him the day after he was let go. They had also contacted him last summer trying to "lure" him away from his former job. They are in the same industry he just left, which is not a stable industry at the moment. He played phone tag with the HR gal for three weeks, no lie.
I guess everything went fine, except for the small fact that they are no longer looking for someone. Nice. The projects they had to work on are being put on hold for awhile. So why even have him come down? For shits and giggles? Who knows, but I think it was a little bit of a blow for him. I think he saw this as a fall-back position; even if he couldn't find anything suitable it was at least an option. I guess that option is now gone.
So now what? I have to to have faith that there is something out there for him that 1. Will keep us in our current location and be within reasonable commuting distance and 2. Pays about the same or more. Not alot to ask, right? Ha.
I guess everything went fine, except for the small fact that they are no longer looking for someone. Nice. The projects they had to work on are being put on hold for awhile. So why even have him come down? For shits and giggles? Who knows, but I think it was a little bit of a blow for him. I think he saw this as a fall-back position; even if he couldn't find anything suitable it was at least an option. I guess that option is now gone.
So now what? I have to to have faith that there is something out there for him that 1. Will keep us in our current location and be within reasonable commuting distance and 2. Pays about the same or more. Not alot to ask, right? Ha.
Friday, March 28, 2008
Things You Should Tell Your Wife
Dh and I have two very different communication styles which has led to a few, shall we say "discussions" over the past 14 years. While I like to share the mundane details of my life (usually things I've read on online bulletin boards or blogs--dh could mostly care less), dh likes to keep things to himself. That means at times I have to be a psychic mind-reader to know what is going on in his head. Often he doesn't share little details--like when he gets a bonus for example.
Are there other things you should maybe tell your wife? Hmmm, let's think here. You are currently unemployed. You finally talk to a company after playing phone tag for a month (forget to share that detail). You have a job interview. Yeah, another jem he felt he didn't need to share with me. Grrr, men. After I found out (because I was talking to my dad on the phone telling him dh hadn't talked to this one company yet and dh is shaking his head "yes he has" in the background) I asked him if he was going to share that with me or just tell me he was getting up at 6 am on a Friday to go out of town for fun. Anyway, I wish him luck today. It isn't a dream job by any means and we were both turned off by some of the things said on the company website, but its a start.
Are there other things you should maybe tell your wife? Hmmm, let's think here. You are currently unemployed. You finally talk to a company after playing phone tag for a month (forget to share that detail). You have a job interview. Yeah, another jem he felt he didn't need to share with me. Grrr, men. After I found out (because I was talking to my dad on the phone telling him dh hadn't talked to this one company yet and dh is shaking his head "yes he has" in the background) I asked him if he was going to share that with me or just tell me he was getting up at 6 am on a Friday to go out of town for fun. Anyway, I wish him luck today. It isn't a dream job by any means and we were both turned off by some of the things said on the company website, but its a start.
Thursday, March 27, 2008
Easter Pics
Between dh sleeping in this morning and having a dentist appointment at 10:40 am, I have had the computer all to myself so far today (buhwahhahaha). In that time I have now posted three blog posts and uploaded a ton of pictures. Enjoy!
Hunting Easter eggs at Grandma & Grandpa's:
Looking at the loot:
So the Easter bunny had to get creative this year. LC is allergic to milk and egg products, so she can't have any chocolate. And what is Easter without chocolate, I ask? So she gets things like jelly beans, marshmallows, money, and Smarties. But that isn't fair to EE. This year the Easter bunny came up with a plan. He hid candy for EE in yellow, blue, and green plastic eggs. LC's candy was in purple and pink eggs. The smart Easter Bunny left a note that told the girls which color of eggs to pick up (gee, Santa did the same thing at Christmas telling them what color of wrapping paper was theirs). Everything went off without a hitch.
All dressed up:
("Mom, I don't want to take another picture!")
("I'll smile, I'm a cheese hound!")
Grandma & Grandpa with grandkids:
Family picture:
(Note, this happens about once a year. I need a highlight in the worst way and for some reason I think my haircut makes me look 40. Blech. And dh usually has on glasses, but they were creating a glare so he took them off. I hate pics of myself)
To go with my random ramblings earlier today, here are some random pics:
EE:
Jelly face:
My attempt at piggy tails on LC (they stay in for about 5.2 seconds):
Hat, anyone? I got a few:
LC's jelly face:
LC sharing a secret with cousin G
Hunting Easter eggs at Grandma & Grandpa's:
Looking at the loot:
So the Easter bunny had to get creative this year. LC is allergic to milk and egg products, so she can't have any chocolate. And what is Easter without chocolate, I ask? So she gets things like jelly beans, marshmallows, money, and Smarties. But that isn't fair to EE. This year the Easter bunny came up with a plan. He hid candy for EE in yellow, blue, and green plastic eggs. LC's candy was in purple and pink eggs. The smart Easter Bunny left a note that told the girls which color of eggs to pick up (gee, Santa did the same thing at Christmas telling them what color of wrapping paper was theirs). Everything went off without a hitch.
All dressed up:
("Mom, I don't want to take another picture!")
("I'll smile, I'm a cheese hound!")
Grandma & Grandpa with grandkids:
Family picture:
(Note, this happens about once a year. I need a highlight in the worst way and for some reason I think my haircut makes me look 40. Blech. And dh usually has on glasses, but they were creating a glare so he took them off. I hate pics of myself)
To go with my random ramblings earlier today, here are some random pics:
EE:
Jelly face:
My attempt at piggy tails on LC (they stay in for about 5.2 seconds):
Hat, anyone? I got a few:
LC's jelly face:
LC sharing a secret with cousin G
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